I am feeling great so far after all they are throwing at me! A tiny bit of nausea at times, a bit fatigued and I’m being poked and prodded and injected with things. The good news is that I am walking 1 mile a day (11 laps around the halls of the north wing) and feel strong enough to ride on the bike in the fitness room for 45 minutes to an hour as well! Sheri and I have done this regime every day. I have had lots of family and friend visitors so I have not been bored at all. As a matter of fact, I’m enjoying writing this while alone for the first time while Sheri is doing our laundry. I am hooked up to a Prograph infusion which I get for 4 hours 2x a day.
So far, Bloodwork looks right on target. Prograph is working to suppress my immune system and I’m now on anti-fungal, antibiotic, antiviral, liver protector, fluids to keep kidneys safe, steroids, etc. More good news is that the steroids make my cheeks nice and rosy. Bad news it is supposed to make me irritable! Yikes! Nurses and attendants are top notch and also nice and fun. The doctors on call are on top of things and friendly. Dr. Lechowicz has come by, I got a sweet note from my internist Dr. Fryhofer and Dr. Waller’s (my transplant doctor) office is 90 seconds away. I haven’t seen him yet but his partners are on it. I have his email and cell phone if I need it.
The room has been “dressed” and is fully functional and now homey and comfortable since we brought lots of the house with us: ottomans, battery powered candles, aromatherapy diffuser and essential oils, healing crystals, throws, yoga mats, painting supplies, puzzle (in progress) and unique “mermaid themed” duvet cover bedding for Sheri’s bed and for mine! Sheri has been my amazing, super star caregiver soon to become germ Nazi! Looks like a college dorm room! and best of all…. my painting of Watson straight ahead of me in his “staring at me” pose:)
I am looking at this as an adventure. Chemo is now finished and I’m at day -1. Tomorrow is transplant day 0! It’s my new birthday! On Wednesday I will be 1 day old! I am getting the real deal bone marrow cells vs peripheral stem cells! My stay at Emory will be longer but I am thrilled with my 10 out of 10 match, 26 year old angel donor with A- blood type (I am A +) who has so graciously agreed to have this bone marrow retrieval surgery. They say that my next phase after transplant will be the basement phase but I have re-named it as the “wine cellar phase” … has a better ring to it!
Thank you to Humana …my insurance savior. I am also so grateful for my strong faith in God, my incredible parents and sisters, my extended family, my amazing office team (who are holding down the Sims Patrick fort) and my gift showering friends. A big shout out for Caroline Yost who has spearheaded this blog and pushes these blog entries out to you from me. I have never felt so much love in my whole life unless you count my marriage to Carl or the birth of Alex.
I love you all! Thanks for the constant love and support from each one of you.
Over and out from the Emory transplant floor from the bedroom in penthouse room 947!