It has been a while since I have posted an update and right off the bat, I want to tell you that I am feeling great and my bloodwork yesterday matches my feelings! It’s day 101 since my transplant on February 26 and I am filled with joy and hope for the future. I am Praising the Lord for this new lease on life.
Sheri and I were at the clinic yesterday and I got to see Dr. Waller and his team with big smiles on their faces telling me that so far, I was an example of how things can go well. Of course I can’t help but focus a little bit on the “so far”part. Due to the acute Grafts vs. Host disease that I had a month ago, I started on a huge dose of 110mg of steroids each day and now I have tapered down to 10mg each day. They stopped my liver protection medication last week but I’m still taking around 32 pills a day. Yikes! I have my first PET scan next week on the 12th and then I will see Dr. Waller for the results on the 13th. I feel confident that the scan will be completely clear with the new blood of my angel donor, however, it always strikes a cord of fear to get a test or scan. On the other hand it gives you such a sense of relief when it’s complete and clear.
I have been continuing to add hours to my SPS work load although remotely. Next week, I plan to start going into the office more regularly even if it is for short spurts of time. I am also still really busy with personal projects at home. Sometimes I wonder how I ever had time to work full time with all the things that needed to be tended to. … and maybe I have just had the time to slow down and notice the yard, the insides of cabinets, closets and storage.
At the office, things are going really well with our teams on existing hotel projects and Jenny and Melissa have just landed a new large Resort. They and our core management team are doing such an incredible job keeping things on track and I am working on a few more potential hotels prospects that are very promising. Yay!
This weekend we will be celebrating a huge milestone with Mom and Dad for their 60th wedding anniversary! Boy have they taught all of us how to keep our sense of humor and hope in the face of adversity. Those two are amazing examples of great people and parents while still finding time to help build an amazing community with their ongoing service for the greater good. We are all looking forward to toasts, roasts and dancing on Saturday night here in Atlanta.
My energy level was Euphoric on the high dose of steroids but is now tapering off. My mind is a bit spacey at times due to the real, but hopefully temporary effects of chemo and some of the medications that I still need to take for at least the next 3 months. I tend to get off track and distracted easily but I understand it could be a lot worse. I tell everyone to check my work!
Alex (who is home for the summer), Carl and I are finding time to have fun dinners together either trying new places around Atlanta or cooking Green Chef with Sheri at home.
My happy place is still outside on the deck where I am sketching, working on projects or just relaxing, praying and watching the birds. There are hummingbirds, cardinals, bluebirds, nuthatches, tufted titmouse’s, woodpeckers etc. that frequent the feeders. Watson and Ludie are usually by my side unless they are hunting chipmunks on my other happy spot, the walking trail around the back of the yard.
It is 10 laps for a mile on the the trail which I try to do everyday with my excersise program. I am halfway through my physical therapy prescription at Emory and then the hope is to be well enough to start back to my kickboxing at the gym in a few months. I still need to be careful of germs until I am off of my immune suppressor drugs hopefully in 3 to 4 months if all goes as planned! God has the plan and I am in Awe!
By the way, I did get to go to the beach and it was so much fun. I had not seen Mom and Dad for so long after Dad’s pneumonia, Mom’s diverticulitis and my immuno-compromised self. It was wonderful to hang out with them under an umbrella with our toes in the sand, eat fresh seafood and walk the dogs on the beach.
I hope each of you are doing well! I know you all are having your own struggles and celebrations and I would love to hear. Thank you for your continued love, support and prayers! It means more than you know. I feel lifted up and so very grateful for you and this precious time on the earth!
Every Cell is Well!